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flyingfrets

Awww...damn

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Guys, thanks for the good vibes and thoughts.

 

It's just so frustrating since I really believed the chemo would work, and in fact, it did alleviate a lot of the bone pain I had before treatment started. It just seems that the disease is just that much ahead of treatment.

 

I'm told my PSA is now 29, but my bone-scans are unremarkable. And oddly, physically, I don't feel too bad. Just very disheartening to be told that in a few months, my physical condition & scans are likely to catch up with what the PSA is telling them. And while I do try to remain hopeful, it's getting tougher to stay that way. Since the cancer seemed to laugh at the taxotere...("Say, fellas, when ya gonna have some more chemo? Friday? Okay...HEY BOYS, THEY'S A CHEMO PARTY FRIDAY!"), it's hard to believe another hormone therapy will make much of a difference, but I will comply. I'm not giving up by any stretch of the imagination.

 

It's just very hard to convey what this does to your head to somebody with no frame of reference. I realize it probably makes me come across as whining, "Woe is me." I don't mean it like that at all. But on the other hand, it is scary. It is frustrating. And there's a certain amount of anger mixed in there too. It just really screws my head around and that opens a whole 'nother can of worms.

 

But I appreciate the empathy and compassion from a "family" of folks I've never even met. To me, that says an awful lot about each and every one of you, and many heartfelt thanks go out to each of you.

 

Thanks for caring enough to reply,

Don

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After going thru cancer with my wife, I can tell you for sure that prayer works. The folks on this forum are fantastic prayer warriors. My wife felt them and so did I. After posting here and over in the Epi lounge, I told her she was world wide, and she started to cry, saying she had just felt a peace wash over her. Again I thank GOD for everyone of you and your gifts. Flyingfrets, in Isaiah 41:30 it says "But those that wait upon the Lord, will renew their strength, they will rise up on wings like eagles, they will run and not grow weary, they will walk and not grow faint"

You have all I can give, GOD bless

TC

 

AMEN! And of course the verse know by almost everyone (probably because it's so true and comforting) "Yea, though I walk through the valley of the shadow of death, I will fear no evil, for You are with me. Your rod and Your staff, they comfort me!" You prepare a table for me in the midst of my enemies; You annoint my head with oil; my cup runs over!" Psalm 23:4-5

 

Hang in my friend! You are correct- you have friends that you do not know, brothers and sisters as we are connected by sharing this world (and our love of music / guitars..)!

 

Brian

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Hi Don, just to let you know that I am thinking of you. I've said a prayer and send good vibes your way.

I was watching the local news yesterday evening, it featured a woman who was diagnosed with cancer at the age of 40. Her doctor/specialist said nothing more could be done, but a new trial drug was available. She went on the trial medication, the cancer never returned, she is now in her 80s.

 

kind regards, Emma

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Sending good vibes and positive energy your way Don. So sorry to hear this sad news; but you keep fighting and let that fear keep you going! I don't know you but I know you can beat it.

 

Best wishes.

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BUMP! I think this should be up towards the top just like Milod's. Flyingfrets is going thru some nasty sh1t and we nees to keep him in our thoughts and prayers. Thanks.

TC

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BUMP! I think this should be up towards the top just like Milod's. Flyingfrets is going thru some nasty sh1t and we nees to keep him in our thoughts and prayers. Thanks.

TC

Hi Thunderchild, that's a brilliant idea [thumbup]

 

 

kind regards, Emma :)

 

 

Hi Don, just to let you know you are still in my prayers and thoughts, been sending both prayers and good vibes your way.

 

kind regards, Emma :)

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Again, thanks for keeping me in your thoughts.

 

I'm beginning a new treatment tomorrow that is defined as a hormone therapy. I already have one hormone blocker in my upper arm, but the theory is that the matastases is feeding on residual testosterone (testosterone being what prostate cancer itself feeds on). So this medication is intended to block the receptors in the PSA and prevent it from feeding at all.

 

Could really use some prayers and energy that this works. Seems to be the least harrowing of the options available to me right now, though the others are still on the table and become more likely in the event the Xtandi fails.

 

Thanks again,

Don

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You are on my list FlyingFrets. I am thinking about you and your family. Take care brother.

 

rct

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I don't know what to say that hasn't already been said flyingfrets. I did send a prayer up just a minute ago. I can't begin to imagine what your thoughts are at this time. Just remember it CAN be beat. Don't stop believing in that. As you go through this journey please remember you are not going it alone, although not there physically we are right there with you in spirit and energy.

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Best wishes to you and positive thoughts coming your way this weekend.

Regards!

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1435750900[/url]' post='1671861']

Guys, thanks for the good vibes and thoughts.

 

It's just so frustrating since I really believed the chemo would work, and in fact, it did alleviate a lot of the bone pain I had before treatment started. It just seems that the disease is just that much ahead of treatment.

 

I'm told my PSA is now 29, but my bone-scans are unremarkable. And oddly, physically, I don't feel too bad. Just very disheartening to be told that in a few months, my physical condition & scans are likely to catch up with what the PSA is telling them. And while I do try to remain hopeful, it's getting tougher to stay that way. Since the cancer seemed to laugh at the taxotere...("Say, fellas, when ya gonna have some more chemo? Friday? Okay...HEY BOYS, THEY'S A CHEMO PARTY FRIDAY!"), it's hard to believe another hormone therapy will make much of a difference, but I will comply. I'm not giving up by any stretch of the imagination.

 

It's just very hard to convey what this does to your head to somebody with no frame of reference. I realize it probably makes me come across as whining, "Woe is me." I don't mean it like that at all. But on the other hand, it is scary. It is frustrating. And there's a certain amount of anger mixed in there too. It just really screws my head around and that opens a whole 'nother can of worms.

 

But I appreciate the empathy and compassion from a "family" of folks I've never even met. To me, that says an awful lot about each and every one of you, and many heartfelt thanks go out to each of you.

 

Thanks for caring enough to reply,

Don

So sorry to here your bad news. Reading the commits, they are right. Never give up! I went through a brain tumor cancer in 1988 and was an experiment for doctors. Lots of blood work, chemo, radiation, bone marrow taken. Doctors and nurses had me wrote off and my wife was ticked when they told her that. I was in so much pain, it felt like someone beating me in the head with a baseball bat. It truly breaks my heart every time I hear others stories with cancer. I've known so many who've gone though it. One thing I did to get my mind off all the trauma and have encouraged others is to smell the roses along the way, enjoy every day as if it's your last and see the humor in things and have as much fun with others as you possibly can. Don't waste time with woe is me or why me God? I did that at first but it just brings depression. Rather, joke with doctors and nurses and have a positive mind set. And trust in God He will pull you through this. Keep the faith and May God bless brother. msp_thumbup.gif

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After learning of Chris Squire's passing yesterday, I saw my own oncologist this afternoon.

 

After a radical prostatectomy, having a lung resectioned, scores of drugs with hellacious side effects, hormone therapy, 7 rounds of radiation and finally 3 moths of brutal chemotherapy...I learned that my PSA numbers doubled again - while I was on chemo. He says that is of grave concern and if I don't respond to this last shot at a new hormone therapy, he can't do anything but refer me to his colleagues in Philadelphia. They would attempt clinical trials (which my insurance may or may not be willing to pay for).

 

But it sounds like they're gradually moving toward trying to prolong my my life on the order of months instead of beating this. I was told given the aggressive nature of my disease, eventually it would outpace treatment. I'm just praying this isn't it. Sorry...I'm scared. I'm only 54...

Our prayers are with you.

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Reading things like this legitimately makes me angry. The fact that in the year 2015 a 54 year old man could possibly die from something as stupid as cancer pisses me off. We are so far behind as a species it's ridiculous. We have landed men on a rock 285,000 miles away, we have rovers on another planet, tiny bits of silicon are capable of processing vast amounts of information, I can pull a rectangular shaped piece of plastic and metal out of my pocket and contact any other human being on the planet, yet despite all of this we can not cure something as trivial as cancer? I can not being the only one to realize how ridiculous that is.

 

Good luck to you flyingfrets. Don't ever stop knowing that you will pull through this.

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...I'm beginning a new treatment tomorrow that is defined as a hormone therapy...

My very best wishes to you and yours through this incredibly difficult time for everyone concerned.

 

P.

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Cancer si such an obscene thing. FF I will pray for you as long as it takes. I do not know you but you can know I am firmly in your corner. God bless

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Hello All,

 

As ever, I sincerely appreciate the prayers & "Well Wishes" from everyone.

 

I began the new medication (something called Xtandi) a week ago. As for progress (or the lack of it), I will have no idea for several weeks. The oncologist will be doing bloodwork to evaluate my PSA level and determine if this treatment is succeeding based on those results, but he typically waits about a month to make sure I have reached a clinical level of the medication, and that my body has stabilized and adapted to it.

 

As with most of the treatments, there are some unpleasant side effects that I hope will minimize as I adapt to it. If they don't, Oh well...as I said, they're unpleasant, not unbearable and I am committed to doing what needs to be done. As with all of it to this point, I am hopeful and praying that it works.

 

And that's about all I know at this point.

 

Again, thank you everyone for your care and concern.

 

Bless you all,

Don

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Hi Don, thank you for letting us know how you are. I know it's easy for me to say, but stay strong and positive. I keep saying prayers and asking healing for you. You are surrounded by folk on the forum who care and send prayers, good vibes and positive energy to you.

 

take care and kind regards, Emma

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