ksdaddy Posted June 13 Share Posted June 13 You have the support, high hopes, and prayers from your forum family. We will be thinking of you. 1 Quote Link to comment Share on other sites More sharing options...
jdgm Posted June 13 Share Posted June 13 2 hours ago, ksdaddy said: You have the support, high hopes, and prayers from your forum family. We will be thinking of you. I even tried playing some guitar exercises this morning, drifting in and out of the haze.... Downstrokes OK but up/backstrokes no good, so alternate picking needs attention.... Which is backstrokes too. Morphine.....f***, what a state| 1 Quote Link to comment Share on other sites More sharing options...
Karloff Posted June 13 Share Posted June 13 (edited) 22 hours ago, jdgm said: I even tried playing some guitar exercises this morning, drifting in and out of the haze.... Downstrokes OK but up/backstrokes no good, so alternate picking needs attention.... Which is backstrokes too. Morphine.....f***, what a state| oh boy John, yea morphine drip makes for a loopy day ... is it automatic or do you have a button to push that has a timer on it ? Edited June 14 by Karloff 1 Quote Link to comment Share on other sites More sharing options...
jdgm Posted June 14 Share Posted June 14 I have a big 10mg bottle with a syringe dropper which is marked 2,3,4,5. 2.5 or 3 is usually enough except at night. Quote Link to comment Share on other sites More sharing options...
Tman Posted June 16 Share Posted June 16 Very best John. I'm rooting for you big time 3 Quote Link to comment Share on other sites More sharing options...
Digger Posted June 17 Share Posted June 17 On 6/7/2024 at 7:11 PM, jdgm said: Hey John I note your comments about laxatives mate. I've done the whole range of opioids and have been on Tramadol for years. Same problem with constipation but recently have been having success with this stuff. https://www.chemistwarehouse.com.au/buy/60898/osmolax-laxative-powder-30-dose-510g-macrogol-constipation-relief-with-no-salty-taste-flavour-free-amp-salt-free?gad_source=1&gclid=CjwKCAjwmrqzBhAoEiwAXVpgovsk33_1NhgOf8ZupjcDSCIMEjpxH34_gwOuRUusOOUk6NswSk-e6BoCKNAQAvD_BwE&gclsrc=aw.ds Not sure if strengths differ but I find this keeps me right for 4 or 5 days, sometimes longer. Sending my best wishes to you my friend. On 6/7/2024 at 7:11 PM, jdgm said: 1 Quote Link to comment Share on other sites More sharing options...
tx-ogre Posted June 17 Share Posted June 17 As someone who has experienced many of the same things one on top of another and knows what it’s like, I’m pulling for you. Hang in there, my friend. It will suck at first, but things do eventually get better. And it’s a great feeling when it does. 1 1 Quote Link to comment Share on other sites More sharing options...
Karloff Posted June 19 Share Posted June 19 John, how are you today ? Quote Link to comment Share on other sites More sharing options...
jdgm Posted June 20 Share Posted June 20 (edited) On 6/19/2024 at 4:40 PM, Karloff said: John, how are you today ? Many thanks for asking. I was due at hospital for a scan which is where they mark the parts of your body they are going to hit with the High-intensive radiotherapy. However I got a message the night before saying all the internal phone systems were down and I should phone a particular number and ext I the morning, in which case their transport Would collect me at the allotted time to be there for the appointment. I was woken from a fine deep sleep by the carer who comes to help me wash, gets me cereal and tea for breakfast, very nice lady, but before any of that could happen I asked her to make a bit of room for me to get my legs off the edge of the bed. She was going on about how I shouldn't be left alone to fend for myself at night while I was hauling myself up with the crutch, and that was when it happened. Instead of getting up and balanced, because my right leg is now weaker than the left I went flying into the wall and she only just managed to stop me totally collapsing and really injuring myself. Ambulance had to be called 2-hr (that's quick) agonising wait, terrible journey to hospital, yet another assessment in A&E and then I'm taken to, guess where, the, **** covid ward. Now every new ward you go to has it's own medical assessment and pharmacist who makes changes to your meds. This one decided I was having far too much morphine, stopped my slow release pills for a single 20ml dose and I can'trember now if I got any paracetamol. Result was one of the 3 or 4 most agonising nights I've had since this started. I phoned each of my sisters in tears this morning and to cut a long story short, got the meds I should be having the slow-release ones And had the CT preparation scan I should have come here for in the 1st place. So my day has got 100% better. Thanks again for your email and for asking, Doug. It means a lot to me... One of my fave forum pics is of you digging into some Trower; looks a smallish gig but you're giving it Some! Edited June 20 by jdgm 1 1 Quote Link to comment Share on other sites More sharing options...
Karloff Posted June 20 Share Posted June 20 7 minutes ago, jdgm said: Many thanks for asking. I was due at hospital for a scan which is where they mark the parts of your body they are going to hit with the High-intensive radiotherapy. However I got a message the night before saying all the internal phone systems were down and I should phone a particular number and ext I the morning, in which case their transport Would collect me at the allotted time to be there for the appointment. I was woken from a fine deep sleep by the carer who comes to help me wash, gets me cereal and tea for breakfast, very nice lady, but before any of that could happen I asked her to make a bit of room for me to get my legs off the edge of the bed. She was going on about how I shouldn't be left alone to fend for myself at night while I was hauling myself up with the crutch, and that was when it happened. Instead of getting up and balanced, because my right leg is now weaker than the left I went flying into the wall and she only just managed to stop me totally collapsing and really injuring myself. Ambulance had to be called 2-hr (that's quick) agonising wait, terrible journey to hospital, yet another assessment in A&E and then I'm taken to, guess where, the, **** covid ward. Now every new ward you go to has it's own medical assessment and pharmacist who makes changes to your meds. This one decided I was having far too much morphine, stopped my slow release pills for a single 20ml dose and I can'trember now if I got any paracetamol. Result was one of the 3 or 4 most agonising nights I've had since this started. I phoned each of my sisters in tears this morning and to cut a long story short, got the meds I should be having in hiding the slow-release ones And had the CT preparation scan I should have come here for in the 1st place. So my day has got 100% better. Thanks again for your email and for asking, Doug. It means a lot to me... One of my fave forum pics is of you digging into some Trower; looks a smallish gig but you're giving it Some! Dear God John I'm sorry. Thank God you finally got the right meds back. Hang in there 🙏 Ty for the kind words. You're in my thoughts n prayers 🙏 Quote Link to comment Share on other sites More sharing options...
jdgm Posted June 20 Share Posted June 20 (edited) @Digger I am becoming an expert on this now. My near-infallible solution is vanilla ice cream, runny, followed after 10 mins or so with hot tea. The ultimate solution is a large raspberry and orange (or something more exotic) fruit juice. That does it!!!! Edited June 20 by jdgm 4 Quote Link to comment Share on other sites More sharing options...
rct Posted June 21 Share Posted June 21 All of my best to you John, and some more that I'll find laying around here. rct 2 Quote Link to comment Share on other sites More sharing options...
mesho Posted July 18 Share Posted July 18 Hi all, John's niece again. I'm afraid that things haven't improved since his last message. He was able to go home for about a week after radiotherapy but readmitted himself weekend before last as he didn't feel he could cope at home. We were told today that he is too unwell for cancer treatment and that the best they can do is keep him comfortable. It might not be long, so if you would like anything communicated to him in the next couple of days please do let me know, I'll be sure to pass it on. I know that you all have been a huge source of comfort to him, thank you. 2 Quote Link to comment Share on other sites More sharing options...
Rabs Posted July 18 Author Share Posted July 18 44 minutes ago, mesho said: Hi all, John's niece again. I'm afraid that things haven't improved since his last message. He was able to go home for about a week after radiotherapy but readmitted himself weekend before last as he didn't feel he could cope at home. We were told today that he is too unwell for cancer treatment and that the best they can do is keep him comfortable. It might not be long, so if you would like anything communicated to him in the next couple of days please do let me know, I'll be sure to pass it on. I know that you all have been a huge source of comfort to him, thank you. Oh no.. Mesho.. I am so sorry to hear this and really have no words... I just hope they can keep him as comfortable as possible. Please keep us updated and thanks for letting us know. 1 Quote Link to comment Share on other sites More sharing options...
PrairieDog Posted July 18 Share Posted July 18 (edited) Oh, I’m so sorry to hear this. Please tell him he was a big part of this place, and he was one of the truly memorable folks here. I always noted his help and comments when I joined. I wish him only comfort and the love of family as he faces this new transition. Bless him and you for taking care to reach out here. A comforting, virtual hug is offered. Edited July 18 by PrairieDog Quote Link to comment Share on other sites More sharing options...
ksdaddy Posted July 18 Share Posted July 18 Please pass along my hope that with however much time remains, he find peace within himself and to say anything that needs to be said. 1 Quote Link to comment Share on other sites More sharing options...
SteveFord Posted July 18 Share Posted July 18 Tell him I said I'm very sorry to hear that, he is a good man. He was always a real bright spot on this forum, for sure. Quote Link to comment Share on other sites More sharing options...
gdecantoo Posted July 19 Share Posted July 19 You continue to be in our prayers John. 1 Quote Link to comment Share on other sites More sharing options...
saturn Posted July 19 Share Posted July 19 I wish it was better news, and I wish I knew something profound to say here. Just know we're thinking of you and that we've enjoyed your contributions over the years. Quote Link to comment Share on other sites More sharing options...
Pinch Posted July 19 Share Posted July 19 We're thinking of you. Quote Link to comment Share on other sites More sharing options...
Karloff Posted July 19 Share Posted July 19 I'm so sorry to hear this ... Quote Link to comment Share on other sites More sharing options...
Phil OKeefe Posted July 19 Share Posted July 19 I'm so sorry to hear that, Mesho. I'm keeping John and your family in my thoughts and praying for peace and comfort for you all. Quote Link to comment Share on other sites More sharing options...
IanHenry Posted July 19 Share Posted July 19 Heartbreaking news, please pass on our best wishes. Quote Link to comment Share on other sites More sharing options...
merciful-evans Posted July 19 Share Posted July 19 John has done his best. The NHS staff have done theirs. He's still here and I hope he can remain for as long as he means to. Quote Link to comment Share on other sites More sharing options...
tx-ogre Posted July 19 Share Posted July 19 I’m so sorry to hear that. I wish I had something profound or worldly to say, but I have never been good at this sort of thing. He’s a great guy and has made these forums a better place. 1 Quote Link to comment Share on other sites More sharing options...
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